Entyvio – My First Infusion

Entyvio (vedolizumab) - what is it like? This post is about my first experience with an infusion - answering questions about what to expect, what happens, side effect and how I felt after the treatment.

Yesterday was my first Entyvio (aka vedolizumab) infusion and before I went, I had questions galore.  Once I had the go-ahead for the treatment, the doctor didn’t give me any information about the whole process or what to expect (they’re usually pretty good so don’t know why they didn’t think to give me any info ahead of it!).  There’s a LOT of technical information out there on the WWW, but I couldn’t really find much about what it was actually like – what happens when you go for your infusion, how you feel afterwards, etc. so I made a list f everything I wanted to know, put it out to the Crohnie community on Instagram and was blown away by not only all of the answers but messages, love and support from everyone!

Thanks to Instagram, I had answers for everything I was curious about from people who have already been taking Entyvio but then I though “hey!  Now that I’ve had my first treatment, why not answer my own questions?!” (and maybe add a few bits about how the treatment went that maybe I didn’t think about asking before).

Here we go!

10:30 am, I checked in at the Ambulatory Emergency Care desk of my local hospital.  It was pretty packed as they seem to share a waiting room with the blood test waiting room.

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