Living with Crohn’s Disease can really be tough at times. Sometimes I forget that I’m not the only one living with this illness…yes, I’m the one with the disease but someone else has to also live with the hospital appointments, the medications, the restless nights, the moon face, the constant toilet trips – Mr Crohn’s.
I was diagnosed after we’d been together for some years so he’s had to come to terms with it as much as I have but sometimes I forget about this. I forget how he must feel when he sees me in the middle of a flare up. I forget how frustrating it must be to have someone constantly dozing off or needing to run to the loo in the middle of films. I forget that hospital appointments are perhaps as stressful for him to see me go to as they are for me to actually be there.
I asked Mr Crohn’s a while ago if he fancied writing a little something about what it’s like living with a Crohnie and it had skipped my mind until I saw him typing furiously last night. He emailed me a copy, I went to another room to read it and I bawled my eyes out several times. I’m talking about a third of a loo roll used for eye wiping/nose blowing.
I really couldn’t ask for more from this man. He’s my fiancé, my best friend, my personal comedian, my rock, my love, my everything. The times I do think about how tough it is for him as well I wonder how the hell he deals with me. He’s nothing but patient, understanding and caring and somehow always knows exactly how to cheer me up whether it’s with a silly dad joke, a cuddle or just the amazing superpower of being able to pick exactly what film I need to watch to lift my spirits.
I really don’t think I could have done a lot of this Crohn’s thing without him and think it’s really important to share what it’s like living with someone with Crohn’s Disease from his perspective. I’ve waffled on enough now so want to hand you over to him…
Continue reading “Living with Someone with Crohn’s (Guest Post!)”
Current situation: flaring
Although I’m flaring I actually feel a teeny bit positive…
My gastro doc requested for me to see a psychiatrist or cognitive behaviour person because although most of the time I’m chipper and happy, there are times when Crohn’s gets me down and these times are becoming more frequent so it’s only right to go and talk to someone. Continue reading “Thursday 22nd Feb”
I got the result from my “lady test” today – all clear!
It’s so, so important for ladies to get checked out. After having a colonoscopy and a flexi sigmoidoscopy a cervical test is absolutely nothing. Just do it, ladies!
Blood tests are a big part of diagnosing and managing your Crohn’s so don’t be scared if your doc asks you to get them done.
Before I was diagnosed with Crohn’s I had never really needed blood tests for anything as I was a pretty healthy human being. You can imagine how freaked out I was when the phlebotomist loaded up a tray with 7 vials of different colours…
Continue reading “Blood Tests”
So in my last post I mentioned that I wanted to push for my Humira dose to be increased from once every two weeks to once a week. I’ve tried it before, it seems to work for me.
Continue reading “Today’s Appointment (and a Little Rant)”
I feel like shit. It was bound to happen. Everyone around me (other half, colleagues) have all got or had the “lurgy” and it seems that now it has blessed its presence with me.
I’ve been surprisingly healthy over the last few years considering I’m on Humira and my immune system is low.
I used to get sinus infections all the time and the usual autumn/winter colds that everyone else got.
I’ve now got the beginnings of a cold/flu and I’m miserable. Throw me any Crohn’s stuff and I see to be able to deal with it but a cold?
Everyone else around me who is ill is popping the vitamin C and trying to boost their immune system but feeding my immune system is the last thing I want to do.
What do you do when you are feeling sneezy and cold-y?
I have to share a secret with you…my name isn’t actually Bridget. I do, however, have Crohn’s disease so this blog isn’t all lies. Far from it, in fact – this is open and honest posts about an IBD (Irritable Bowel Disease) that until I was diagnosed, I had never heard of it (like many people)!
So where did it all start?
I’m pretty sure with a kebab. Continue reading “It All Started with a Kebab…”