This is my last dose of Humira! Last one! An end of Humira (end of an era…get it? *sigh*)…My bi-weekly injections stopped working their magic probably over a year ago. Although I could get approval for funding for weekly injections for 3 months at a time, for whatever reason a year of this funding was rejected a first, second, third, fourth time….
It’s ridiculous because it WORKS! The final time my gastro doc put in a request for funding he very clearly stated to whoever approves it that if it got rejected he would be applying for me to start Entyvio which is actually more expensive! His words in the letter – “if this is refused then the next line would be Vedolizumab which is more expensive which sounds counterintuitive”. YES! Go doctor!!!!
Anyway, it got rejected and I’m now 2 infusions in on Entyvio but have one Humira injection left. I’d normally post about what had happened since the last injection 2 weeks ago (the good AND the bad) but feel it’s only right to think back to some of the wonderful happy things that have happened since I first started using Humira back in March of 2014…
Became BFFs with Mary Berry. Ok, maybe not bestie but had the pleasure of meeting this lovely tiny lady
I was on a radio programme – twice! I was one of three guests on a show about food – we all brought in things to eat, ate everything and talked about it (part of my previous life as an aspiring food blogger…)
Mr Crohn’s and I visited Iceland. I’d wanted to visit for a really long time and it was everything I expected and more.
Moved to Twickenham – we hit the house jackpot and managed to find a really lovely house in a fantastic location.
Had the most amazing birthday surprise day out thanks to Mr Crohn’s – unicorn cake in a cat cafe, “Don Juan in Soho” starring the amazing David Tennent and topped off with having to change into an outfit in a pub toilet having no clue why I was wearing it and then heading to Secret Cinema “Moulin Rouge” – quite possibly the best day of my life!
I’m kind of sad to say farewell to Humira but know that it will do some wonderful things for people out there whether they’re just starting it, been taking it for a while or are yet to be prescribed it. Maybe one day we’ll meet again but until then, here’s hoping Entyvio picks up where Humira left off!